← Return to Systemic Mastocytosis: Does anyone have bone pain?

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Hi @jeffreymelsontate, There are 6 six types of systemic mastocytosis and treatment can vary, depending on the type and the body organs affected.
These are the types:
~Indolent systemic mastocytosis
~Systemic smoldering mastocytosis
~Systemic mastocytosis with associated hematologic neoplasm
~Aggressive systemic mastocytosis
~Mast cell leukemia
~Mast cell sarcoma

It sounds like you may be new to systemic mastocytosis. If you’d like to learn a little more about the condition I’m posting to links for you:
~Mayo Clinic
https://www.mayoclinic.org/diseases-conditions/systemic-mastocytosis/symptoms-causes/syc-20352859
~Cleveland Clinic https://my.clevelandclinic.org/health/diseases/24386-systemic-mastocytosis

Were you recently diagnosed with systemic mastocytosis? Has your doctor offered a treatment plan? What symptoms led to your diagnosis?

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Replies to "Hi @jeffreymelsontate, There are 6 six types of systemic mastocytosis and treatment can vary, depending on..."

@loribmt Yes I have severe bone pain... going to UAB to have a bone marrow biopsy taken on March 4, I am on AYVAKIT,H1 H2, VISTARIL,MONTELUKAST. CROMOLYN AND AN INHALER...IM 73