← Return to Using anti-fibrotics to treat ILD

Discussion

Using anti-fibrotics to treat ILD

Lung Health | Last Active: Apr 30 12:42pm | Replies (10)
Comment receiving replies
@acs43

I've been on OFEV since April 1st and so far haven't experienced any of those gruesome reported side effects. It was suggested to me 8 months ago. I refused because of awful reported adverse effects. When i finally decided to try it, it was a given that i would stop immediately if i had to. So give it a try is my advice. You can always stop. Ann in Arizona

Jump to this post

Replies to "I've been on OFEV since April 1st and so far haven't experienced any of those gruesome..."
cameron747 | @cameron747 | Apr 22 2:28pm

Thank you, Ann. I am leaning in that direction. I see the specialist in three weeks and will revisit the subject then. The literature, including Boehringer's own, paints such an unpleasant picture of the drug and its side effects. Yet any response I have had from people who are using it, both here and on other sites, suggest that the reports of those nasty side effects might be overblown.
I am taking Myfortic and am now being tapered off prednisone. I have had no side effects from the Myfortic but I would not wish prednisone on my worst enemy. OMG the negative effects from it were terrible.
Thank you, again.

VIEW AND REPLY