Update: I really like this oncologist PNET is his specialty! I like what he said to my son “ consider this as a chronic disease!” My son thought he would be dead within the year based on his Dad’s diagnosis pancreatic cancer but totally different tumor. We need the K1-67 but right now he wants his symptoms under control. Scheduled for a PET scan and glucose and polypeptide hormone lab. In the meantime going on creon. Hopefully this week will help with more answers. He is going to get a biopsy of lymph node in neck but probably next week or so. I’ll keep you updated. Thank you again for the help!