Seizure meds and meningioma

Posted by bad1 @bad1, Apr 17 12:35pm

I was recently diagnosed with a meningioma (2x4x4.5 cm)on the right side of the brain towards the back. Doctor is worried about operation because of veins in the area. In the mean time I have had several episodes on the left side of my body that feel like a buzzing sensation moving all over different areas from my arm to my face to my back. My doctor just prescribed keppra thinking that these episodes are seizures. I am curious if anyone has experienced this and any advice or comments is greatly appreciated.

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I find keppra sedating. The extended option is better. An EEG might help identify if you have a seizure pattern.

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@bad1
I wonder if you're experiencing a focal awareness seizure known as Jacksonian March.
I agree with @thomhorowitz regarding extended release Keppra. The extended release formulation of medications often stop or decrease side effects. After 45 years of uncontrolled seizures my new neurologist only prescribed extended release meds to seizure patients that were controlled after I started taking the extended release version.
Have you had EEG?
Although EEG's pick can record abnormal electrical activity, it depends on the length of seizure, placement of electrodes in relationship to where the seizure activity is. Approximately 50% of people with regular seizures have normal EEGs.
Are you experiencing any side effects?
Take care,
Jake

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@jakedduck1

@bad1
I wonder if you're experiencing a focal awareness seizure known as Jacksonian March.
I agree with @thomhorowitz regarding extended release Keppra. The extended release formulation of medications often stop or decrease side effects. After 45 years of uncontrolled seizures my new neurologist only prescribed extended release meds to seizure patients that were controlled after I started taking the extended release version.
Have you had EEG?
Although EEG's pick can record abnormal electrical activity, it depends on the length of seizure, placement of electrodes in relationship to where the seizure activity is. Approximately 50% of people with regular seizures have normal EEGs.
Are you experiencing any side effects?
Take care,
Jake

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Jake,
From what I have read they are focal seizures. I am currently waiting to see a neurologist. The medicine just makes me feel funny. I have numbness in my face and headaches from the tumor so not sure if the keppra is helping or making that worse.
Thank you for your comments. I will ask these questions when I see my doctor again.

Thanks!
Bridgette

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I had to try several anti-seizure drugs to find one I can tolerate. Keppra was by far the worst. My behavior became erratic with lots of anger and depression. I took it for several days until my family urged me to stop. My symptoms cleared up quickly. I’m sure it’s different for everyone but it was a bad experience for me.

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Hi @bad1, Good Morning
When I started treatment with anti-seizure medications (AEDs), I suddenly began experiencing some motor focal seizures, which I had not had before. I cannot remember what happened during these seizures, as they were complex seizures, also known as focal impaired awareness seizures. It was my husband who observed those arm movements during these episodes. The movements occurred on my right side, as my mesial sclerosis is located in my left temporal lobe. I believe this happened while I was taking Tegretol and Vimpat.
I lived with undiagnosed epilepsy for decades, during which I had normal EEGs. At that time, I was not instructed to minimize my sleep before the exam. Once I received that guidance, some EEGs showed epileptiform waves.
Happy Easter!
Chris (@santosha)

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@jakedduck1

@bad1
I wonder if you're experiencing a focal awareness seizure known as Jacksonian March.
I agree with @thomhorowitz regarding extended release Keppra. The extended release formulation of medications often stop or decrease side effects. After 45 years of uncontrolled seizures my new neurologist only prescribed extended release meds to seizure patients that were controlled after I started taking the extended release version.
Have you had EEG?
Although EEG's pick can record abnormal electrical activity, it depends on the length of seizure, placement of electrodes in relationship to where the seizure activity is. Approximately 50% of people with regular seizures have normal EEGs.
Are you experiencing any side effects?
Take care,
Jake

Jump to this post

Hello. I take the med Keppra and have been feeling like my nose and face is sitting on ice. (Very uncomfortable) I was experiencing black outs but I still could hear everything going on around me when I black out. Now I'm experiencing buzzing in my right ear(so annoying) Is anyone else experiencing this? Surgery for removal is not until June.. I'm patiently waiting.

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I found immediate release Keppra overly sedating. Using the extended release at night solved the problem. Unfortunately there is no generic but CVS has given us the best price we could find with single care or good Rx coupon.

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