Can brachy radiation prevent recurrence for Grade1 FIGO stage 1A EC?
I was diagnosed Grade 1 FIGO Stage 1A with dMMR lynch symdrome, Dr. treatment is no adjuvant treatment, only monitor, I kind of worry recorrence, does anyone have any suggestion for what I need to do next, does brachy radiation can prevent recurrent or any other option to avoid recurrence? Many thanks
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You don't have an aggressive cancer, but I understand the worry about recurrence. I was Grade 1 Stage 2 with no genetic abnormalities, and no invasion outside of the uterus. I had a total hysterectomy. I was told I could just "wait and see" , or I could have external beam radiation and chemo, or I could have Brachy. I decided to do just two rounds of high-dose Brachy about two and a half months ago. I am doing fine, although I have some stiffness in the hips, probably from the surgery, and have done pelvic floor PT. In May I'll have another check-up. Brachy was really simple for me, even with a high dose. Maybe get a second opinion. I got two second opinions.
i have grade 1 stage 2 with 57% of my uterus having cancer. it did not spread outside my uterus or into my lymph nodes. no genetic abnormalities
my oncologist said that anyone with 50% or more of their uterus with cancer should have brachy. i am beginning my brachy at the end of the month. i will have 5 sessions of brachy.
@klue It's great that your oncologist provided this helpful information to you. I've had brachytherapy. It was awkward because I had to lie very still on a table with my legs up in stirrups during the treatment. The medical staff were very compassionate and did so much to help me very comfortable. I had no reactions or after effects from the brachytherapy. I did and still do use a moisturizer and vaginal dilator because brachytherapy to the vagina results in scar tissue. Your oncologist and/or the oncology nurse will likely talk with you about this. Do you know when your brachytherapy is scheduled?
i already had my simulation and they are calling me this week to let me know which 5 days i'll be having the treatment on.
i felt very uncomfortable at the simulation. i'm used to having to lay down with legs in stirrups but i am not used to a man being in the room.
i'm 61yo and have never been exposed like that in front of a man aside from my husband.
i even spoke to the doctor of radiology about it and she said that the man actually works the equipment to deliver the treatment.
i had a long talk with my husband about it because i didn't want to do the treatment because of it but my husband is just so worried i could die that he begged me to go thru with it.
@klue My radiation oncologist is male however I already knew him since he had examined me prior to the brachytherapy. There was also a man, the radiation physicist, who was seated in a room behind glass who could see me. The radiation physicist's job is to consult with the radiation oncologist on the actual radiation that is administered. Is that the main you refer to who "works the equipment to deliver the treatment"?
I can understand your worry and discomfort about all of this. This is why so many of us prefer to have women doctors. Since you've already talked with your radiation oncologist (doctor of radiology) would you like to do that again? Because of the exposure of radiation I recall that no one else can be in the room during the brachytherapy so your husband cannot be in the room with you. Could you ask your doctor what to do? Could you husband accompany you through this as much of the treatment as possible? Is there a social worker in the oncology department that you could talk with to help you with all of this?
Thank all and @njp515, I have MSH6 germline deletion , which is lynch symdroms, when I googled it, some even state 38% recurrence rate for this dMMR caused EC. Is there anyone with dMMR? I will have radiation Dr appointment soon, I kind of lead to have brachy therapy to prevent recurrence, will see what happens. Thank you all.
Good luck with it! If you are still undecided, then get another second opinion, even if it is a tele-doc.