Connect
← Return to How long you can live taking Hydrea (Hydroxyurea)?
Discussion
How long you can live taking Hydrea (Hydroxyurea)?
Blood Cancers & Disorders | Last Active: Apr 25 7:05am | Replies (23)Comment receiving replies
Hello, stacerb1! ET diagnosis is a shock. Remember that every low-dose aspirin and every capsule of HU is helping you.
Others on this forum have taken HU for 15 or more years. As debhammel has said, HU works well to lowers our platelet counts. And when the counts go down, we get some relief from the exhaustion and headaches that are part of ET.
What dose have you been started on?
You must have a million questions. To find more ET conversations, just type "ET" in the search bar at the top of this page.
Replies to "Hello, stacerb1! ET diagnosis is a shock. Remember that every low-dose aspirin and every capsule of..."
After adjusting to a dose of 500m HU daily, my platelets have been down in the low 400K range for months but I am just as exhausted as ever. Iron panels are normal. Folate and B12 are at the top of the normal range.
Connect
@janemc I was just diagnosed this month, I am taking low does aspirin & 500mg of Hydrea every day. So far I’m not too symptomatic, just random headaches and tingly feet. Thank you for your response. All the best to you Jane on your journey!