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Has anyone with an ileostomy dealt with nonstop nausea?
I’m 1 year into my permanent ileostomy and have done really well since August until nausea hit me 3 weeks ago and it’s been relentless. I used Zofran shortly after my surgery a year ago for occasional nausea but this is different and nausea medications have done very little to help. Seems to get a bit better in the afternoons but the mornings are the worse. It’s not affected my appetite really or caused me to lose weight or kept me awake at night but it’s basically constant and I’m tired of it. Fortunately I got an appointment with my gastro dr for next week but wondering if anyone else has had the same problem. I have noticed that my output is much less than normal but no pain is involved like an obstruction would be and I’ve had obstructions so I know what they feel like and know that my output stopped with an obstruction. I’m praying it’s not related to that issue. Any ideas?
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Have you gotten any feedback my daughter 4 weeks post op and has nausea every morning almost with bile. No blockages nothing working. Any idea how to help or what this could be?
Yes my daughter has. Any word on what this is and how to cure this?
Yes!!! First off I’ll assume she’s tried anti-nausea drugs like Zofran, right? Since surgery is so recent for her, the nausea is likely still surgery related so my eventual diagnosis may not be what your daughter needs but this is what finally worked for me.
Not only do I have an amazing gastro dr in Florida but I also work with a virtual ostomy dietitian who has done wonderful things for me and my health and since she works with so many ostomy patients she has more knowledge than most drs!! And she asked the right questions for me to ask my dr when I finally decided I needed to see my gastro dr. I’ll start this by saying I have never suffered from reflux and I still don’t don’t feel any reflux now BUT ostomy patients have a history of suffering from “silent” reflux and my gastro dr concurred and my ongoing nausea symptoms were cured by putting me on an anti-reflux medication. In 5 days my nausea was gone! Omeprazole was the drug that did the trick for me and I am finally nausea free. I have an ileostomy (14 months ago) but if she’s taken all kinds of nausea medication already this condition might be something to ask her dr about. I suffered 6 straight weeks of non-stop nausea so I know how she’s feeling!! Best of luck to her! Yvette
Sorry to read that so many of you/us are suffering with nausea, especially since there doesn't seem to be a solution yet. For just over a year I've had a colostomy and urostomy/ileostomy, both permanent. My symptoms aren't exactly nausea, but close: eating, and even the thought of food are out much of the time. The feeling is a lot like the debilitating generalized sensation that comes after experiencing a sharp pain such as slipping off a bicycle seat onto the crossbar, or slamming your thumb with a hammer.
I suspect that the problem is related to the colostomy: when it's actively working--changing size and shape, heating up, not necessarily producing stool--then I feel sick. This can go on all day. I am able to get relief by lying down, but who wants to lie down so much? The good news is that at least I can sleep okay at night.
I've monitored and modified my diet so that the stool is fairly hard and much easier to deal with than the soft stuff. However, the output is completely irregular, and I do wish it would be more predictable.
The osteomy nurse and colorectal surgeon I've seen about this issue both recommend a scope, but I'm definitely not in shape for that, especially the prepping. And based on the evidence that turns up irregularly, I'm sure there isn't a blockage.
Does anyone have any suggestions?
Reading everyone’s story concerning nausea, all of us have different symptoms, different conditions and different treatments. Some that have worked and others that haven’t. I’m glad my 6 weeks of solid nausea was resolved when “silent” reflux was diagnosed and appropriate medication was prescribed. Happy to say I’m nausea free but it’s not the answer for everyone, obviously.