This disease is terrible. I have nerve pain head to toe. I can't sit long because just the compression from sitting causes all the nerves in my spine to hurt and then the pain travels to my arms, legs, eyes, throat, and everywhere. All of my joints are hurting too. My shoulders are so bad now that I can't lift my arms above my head. I struggle to lift a glass of water. I was on Nortriptyline, Gabapentin, and Lyrica, but they stopped working a few months ago and now it's getting progressively worse. I don't know what to do.