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Any one with Neuroendocrine tumors getting the shot once a month?

Neuroendocrine Tumors (NETs) | Last Active: Aug 27 7:50pm | Replies (215)
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Profile picture for cordelia73 @cordelia73

If you don't mid me asking, What was your grade and stage 11 years ago? My husband has just been diagnosed with grade 1/2 stage 4 with liver metastases and Im very scared. He will get the shot every month from now on and hope for no growth.

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Replies to "If you don't mid me asking, What was your grade and stage 11 years ago? My..."
pavlina60 | @pavlina60 | Apr 21 7:38am

I have pancreatic NET , grade 2, stage 4 with liver metastases. Had debulking surgery on Feb.1, 2023. Been on Lanreotide every 4 weeks, have CT scans for monitoring (first every 3 mo, then every 4 mo, now twice a year). My tumor was between the spleen and the pancreas, so surgeon removed the spleen along with more of the pancreas, and gallbladder too (long term Somatouline/Lanreotide injections damage the gallbladder).
My side effects are thinning hair (I take biotin for it), elevated blood glucose. Reach out if I can be of help!
Keep the faith! This diagnosis is NOT a death sentence!💜🦓

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