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@lynnevb

These stories about others reaction to an ET diagnosis is spot on. I have had it for 23 years and neither of my sisters ever ask me about it. If I bring it up they change the subject. A couple of times a sent them articles to read about it. Neither responded and when I inquired they said the articles were too long so they did not read. There is lots of evidence that they do love me but their response to this diagnosis and ongoing challenges is truly a head scratcher.

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Replies to "These stories about others reaction to an ET diagnosis is spot on. I have had it..."

Shame on your sisters, lynnevb! Not asking how you are, not informing themselves about what you're going through -- they are really letting you down.

It's possible they find it painful to acknowledge that a loved one is suffering. Still, that would be putting themselves first, and you last.

They don't deserve to have such a forgiving sister. Please choose really tacky birthday gifts for them.

Your sisters sound like most of my family and friends. I know they love me, but they don't ask about ET. I think they see that I look and act normally, don't seem to be in pain, so they assume it went away. I was having coffee with a friend and she noticed that I had been to the lab to get my blood test. "I hope that blood thing isn't back," she said. I don't bother to disabuse them. They clearly don't wanna think about it.