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What are most common side effects when starting HU (Hydroxyurea)?

Blood Cancers & Disorders | Last Active: May 28 5:20pm | Replies (165)
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@janemc

As if a mysterious and scary diagnosis weren't bad enough . . . I'm really sorry your "friends" weren't kinder. Sadly, yours was not an isolated incident.

My sister, whom I've supported through two kinds of acute cancer, informed me that she'd researched ET, and it wasn't anything to worry about. All I had to do was eat more cinnamon! (Huh?)

This forum really saves my sanity.

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Replies to "As if a mysterious and scary diagnosis weren't bad enough . . . I'm really sorry..."
lynnevb | @lynnevb | Apr 19 10:34am

These stories about others reaction to an ET diagnosis is spot on. I have had it for 23 years and neither of my sisters ever ask me about it. If I bring it up they change the subject. A couple of times a sent them articles to read about it. Neither responded and when I inquired they said the articles were too long so they did not read. There is lots of evidence that they do love me but their response to this diagnosis and ongoing challenges is truly a head scratcher.

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cathy8 | @cathy8 | Apr 19 12:28pm

Thanks to everyone on this forum , I was diagnosed with two mutations middle last year, jak2 and Calr, apparently to have both is complicating treatment. Was on Hydrea for month no change then JAKAVI for 6 weeks no change back on increased Hydrea and injection Aranesp increased dosage with both. No hair loss but the tiredness and weakness when doing anything is tough and tho I never suffered with depression I am having to fight that also. Agree with the conception from friends that they think it's not serious as doesn't conform with other cancers. It is great to hear other views and the positive vibes...

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