Dear janemc, Well, you could be right. After I was diagnosed with PV I told two “friends” and was shocked by the lack of reaction. Neither asked me what the prognoses was or even how I felt. And, in subsequent conversations that did not change.
Maybe you’re right about “comprehension” but they’re pretty smart and know how to use Google.
I knew these two to be caring people who I thought I could depend on for some support while I myself came to know more about the condition. I was wrong.
I guess it’s just not as “sexy” as other diagnoses! And, I am glad for that.
I’m not a joiner and it took me a long time before I started participating in this forum and I’ve felt better since I did. Both for being able, I hope to provide some help to others, and for being able to “speak” with others who appreciate what Im going through.