@dorothynoz45 @dlo56
Are you seeing a cardiologist or an Electrophysiologist? If you are not seeing a Electrophysiologist do you have access to one.

From what you are describing and my own experience with now my 3rd ICD/Pacemaker it does not sound right to have pain after so many years.

When you first get your device the body will see it as a foreign object and you will experience discomfort not only from bodies response but from the surgery itself. However, per my EP the body will start to encapsulate your device and discomfort and irriation should go down.

If you have every looked at a ICD/Pacemaker you can see at the top there are several external nodules to connect wires. They protrude outward as well as wires leading to your device. If thes nodules are not flat they can rub against your skin and or muscle. My device is below my chest muscle as I did not have enough skin per my EP to put under skin.

When a cardiologist or EP just looks at functioning of the device they are not looking at patient first philosophy. If you area having pain find out why and treat it. If you are experiencing pain years after device surgery the pain needs to be addressed as to why not just that the device is working okay.

Over the years I have found what aggravates my device and can cause irritation and pain and try not to do those. I do water aerobics 7 times a week. Anything with my arms over my head (especially left side where device is) it aggravates my pacemaker area and it will hurt and feel irriated. I just stopped raising my left arm above my head. Some times I find myslef reaching back with my left arm and will feel some pain in device area. Also if I sleep wrong will also feel it.

Do you have a Pace Clinic where you are getting treated? I go to Mayo Jacksonville and they have an excellent one. They from time to time will have me do arm exercises to see if wires are affected by the movement. I also advise them on any discomfort and they check the device location for any swelling or signs of irritation.