← Return to Recently developed lymphedema: Any recommendations on what to do?
DiscussionRecently developed lymphedema: Any recommendations on what to do?
Breast Cancer | Last Active: Apr 20 1:33pm | Replies (21)Comment receiving replies
Replies to "I developed lymphedema months after having a double masectomy - and the arm that developed it..."
I get a prescription from my doctor for my lymphedema compression garments and then buy them through a durable medical equipment company. Medicare and many private insurance companies reimburse for them that way. I usually only have to pay about 20% of the cost. It is sometimes hard to find a durable medical equipment company that will order the compression garments but your lymphedema therapist may know. One of the companies I deal with has a fitter who is trained in lymphedema and does the measuring for me. Also my lymphedema therapist does the measuring. I think it is more accurate if you can get someone else to do the measuring.
If you are struggling with a lot of swelling you might need a night sleeve, which is heavier than the day compression. It is designed to break up fibrosis that accumulates in the arm. I find the Tribute sleeve works wonders. Sigvaris and Solaris make night garments.
Your lymphedema therapist should be able to recommend which garments are most appropriate for you.
Frenchtoasted is absolutely right, Read up on the lymphatic system and about lymphedema. You will find you may need to educate your doctors about it.
Many thanks for this advice! I will look into getting a gauntlet. Is frustrating that wait times here are so long for a physiotherapist to get me started on therapy (and even a real diagnosis).