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DiscussionThings that move in your body?
Brain & Nervous System | Last Active: 1 day ago | Replies (11)Comment receiving replies

I am gonna re write my paragraph. I have been really freaked out by these new things that have happened. Since 2021 I have had pin pricks. These things that I have now are bizarre to me. I re read what I wrote. The part about something moving up to my right eye. Let me re phrase that. I can say that all of a sudden I felt that something was right underneath my right eye. I definitely felt it. It was like it was sitting there. As far as the blood pressure being high it was. I took it as soon as I felt that underneath my eye. It was 180/90. I took a Clonidine and went to the ER. They found nothing. My blood pressures up till then were good. That was on March 13th. My BP’s after have also been good. I saw my cardiologist on Monday and made her aware of those issues. April 15th after I got the call from the neurology office to make sure I did labs for the MRI I had done today I felt something under my left eye. By the time I got to Quest lab and sat for a bit it was underneath my right eye. So together it was under both eyes. I was prepared. I took my BP stuff and my clonidine with me. I took care of my blood pressure. So today I brought My bag with me with my BP stuff and my clonidine. Today it was on the lower then the the upper part of my right eye. It is just sitting there. Not painful but I can tell it’s there. I am keeping an eye on my blood pressure. I called Jacksonville Mayo and it could be a year to see a neurologist. So I am planning on checking Mayo Rochester. Also Houston because my sister who use to live there said they have lots of hospitals and doctors. I am determined now more than ever. I will not take a pill thrown at me till I hear some things about what is actually happening to me. . I went to my regular Doctor and he doesn’t know much about me yet. He said the names of four pills he could give me. I said NO! I won’t go out now without taking my bag with my BP stuff with me. I don’t mind taking pills but I want to hear some information first. When I went to the hospital in February because of pressure in my head and blurriness and then was discharged home after that I did have feelings of things moving in my head. And it was not pain. Some of these things are hard to describe. I have a small composition book and I am writing in it now if something happens. I think that will help me better than trying to remember. I have read about small nerve fiber and I saw that it can affect many of your systems. I do now remember having some fasciculations something else I need to write down. I really appreciate everyone who writes back and tells their stories or knowledge of things. I need to be more thoughtful of describing things that have happened to me. I am on the page of thinking that my small nerve fiber is deciding to show more things. I have had at least two EMG’s and nothing came of those. When I saw my cardiologist we talked about some of the things that happened to me. I told her I felt labeled with a TIA. She asked me how long I thought it lasted and the symptoms. I told her it was about a minute or two and it went away. No deficits. She doesn’t think it’s a TIA. It will be a question now of what the Neurologists think of my MRI of the head and neck with and without contrast. I get crazy upset when I read my report that a DOCTOR reads on a daily basis then your DOCTOR comes long and doesn’t agree with the person who reads them everyday for years and years. I do remember also that one of my eyes would twitch every now and then. That was before DX of small nerve fiber.
Replies to "I am gonna re write my paragraph. I have been really freaked out by these new..."
@rnlorena
I can feel your stress and frustration. Because fasciculations come and go and tend to happen most when muscles are at rest, the EMGs can easily miss them. You lie on the table after just moving all your muscles.
I can understand why you don’t want to take meds without a diagnosis.
You’re on the right track keeping a journal describing symptoms. May I suggest adding what you ate and drank on the day of symptoms to see if there is a pattern? I know caffeine and chocolate can make my fasciculations much worse even many hours later.