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Permanent SIBO due to removal of ileocecal valve

Digestive Health | Last Active: Sep 23 10:49am | Replies (215)

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I'm sorry that the surgeon was unable or unwilling to help you. I just don't understand why I find articles describing the surgery, but then I can't find anyone who performs it. Mayo does far more complicated surgeries than this one seems to be, like all kinds of bypasses and transplants. I guess I'll keep looking, but it's frustrating to say the least. All the best for you.

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Replies to "I'm sorry that the surgeon was unable or unwilling to help you. I just don't understand..."

I’m new to this discussion and am finding it helpful. I had a sub-total colectomy - I have about 9 cm of colon - and removal of my ileocecal valve in 2007 at the age of 54 because of a serious genetic disease, FAP, that results in colon cancer. About five years after the surgery, I started having severe gastrointestinal issues and couldn’t get a diagnosis. I was finally diagnosed with permanent SIBO and have since tried everything to reduce the symptoms - diet, probiotics, rotating antibiotic regimens - and nothing worked for any length of time. A lot of SIBO research is being done at Cedars Sinai and I’m now following their recommended SIBO diet and eat only three small meals a day, no snacking, and wait at least four hours between meals. I take L-glutamine, fatty 15, magnesium, berberine, get a B-12 shot one a month and have stopped taking antihistamines for my seasonal allergies. All that works to some degree but I still get debilitating SIBO flares which are now more frequent and last longer. I’ve looked in to the elemental diet but worry it would be at best a temporary fix and am now considering ileocecal replacement surgery. Has anyone on this thread had the surgery? If so, what was the result? From what I’ve read thus far, it may be the best treatment for permanent SIBO.