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Living with MDS (Myelodyplastic Syndromes)

Blood Cancers & Disorders | Last Active: Apr 18 2:35pm | Replies (147)

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@loribmt

Hi Cindy, Have you had a chance to read through some of the information in the reply from @colleenyoung? I know there’s a lot to take in with a new diagnosis of MDS for your husband.
There are different subtypes of MDS, usually with specific genetic mutations which can be behind the changes in the bone marrow producing blood cells. Treatment options depend on the type of MDS.

From what you’ve mentioned, it appears your husband has a subtype that requires attention right away in getting his treatment started. He’s being referred to Mayo Clinic for a potential bone marrow transplant which tells me he has a little more aggressive form.
That doesn’t mean panic! In some types of MDS, chemo may work well. But long term remission, in some cases, can be helped with a bone marrow transplant (BMT) At this time it is the only potential cure for MDS.
There are several members in the forum who have gone through this process for MDS with wonderful results. @katgob and @jrwilli1 already shared their positive stories with you. I had a BMT almost 6 years go for AML. I’m in a durable remission and feeling as though nothing ever happened. So there are happy endings to these stories.

What can I do to help you and your husband?

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Replies to "Hi Cindy, Have you had a chance to read through some of the information in the..."

I am trying to read all the comments here. I hope I didn’t miss anyone’s. Thank you all for responding! Tomorrow the nurse will call to educate us in what to expect. Can you suggest questions we should ask her?

Thank you