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Burning Mouth Syndrome: Anyone had success with compounded mouth rinse
Skin Health | Last Active: Jun 1 9:14pm | Replies (53)Comment receiving replies
I was diagnosed with BMS 2 1/2 years ago. It came on very suddently for no apparent reason. Daytime only, never at night. And triggered by acidic or spicy foods. Now after seeing 2 oral surgeons and a neurologist, I'm convinced there is no cure.... it's just one of life's great mysteries.
One oral surgeon gave gave me a rx for a compounded mouth rinse which numbed my mouth for a few hours. I am having best luck managing the burning symptoms with Lyrica (pregabalin) prescribed by my neurologist, along with a strict diet of nothing acidic or spicy. I also get temporary relief from dry mouth lozenges (ThereBreath).
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Yes I have suffered w burning mouth, tongue, and tooth for almost 4 years and spent a fortune trying many things. What finally helped me was getting an esophagus scope of esophagus and stomach. Diagnosed with gastritis with hyperplasia, acid and bile reflux, and Barrett’s. Treatment started with Prilosec OTC 40 mg twice daily and drinking 10 ml sucralfate liquid 3 times a day and at bedtime. When treatment began I was also taking pain pills, pregabalin and baclofen for the burning mouth. Follow all on line suggestions for treating reflux in regard to eating, drinking, and sleeping. I only drink water. I don’t sleep on my right side. Eat light meals and don’t eat after 6 pm. I also elevate my upper body when resting or sleeping. Saw a little improvement of the mouth burning after 30 days of treatment. After 60 days the burning was so much better I could stop pregabalin, pain pills, and the baclofen. I am vastly improved! If burning comes thru during the day I also take Pepsid complete OTC no more than twice daily. The pepsid stops the break thru mouth burning pretty quickly. I did have to change PPI because Prilosec made me cough and I put up with the coughing because the burning mouth was mostly gone. Finally switched to another PPI Nexium. I am 7 months into treatment from when I got the esophagus scope. The burning mouth flares when I take less than two 20 mg Nexium OTC twice daily so I have to maintain the higher dosage of Nexium and continue to take the sucralfate liquid 10 ml 3 times a day and at bedtime. It is amazing now if burning breaks through and I reach for a Pepsid Complete OTC instead of a pain pill. Took a lot of patience to get where I am. I did start taking the baclofen again because I read where baclofen could help reflux. My burning mouth also flares if I have to take a steroid as I was given to help stop the coughing Prilosec was causing and when I had to take an antibiotic for a UTI. I read where baclofen causes burning mouth so this week have stopped the baclofen 5mg to see if that improves tge break through burning mouth I sometimes get. My body can now relax because I can actually have so many hours of my day without any burning mouth. Life is good again.