Been diagnosed with PSP. I live in Canada. No meds here to help fight

@pspalsy I have some traits of PSP, and Frontotemporal Dementia.
There is no CURE for any of this stuff anywhere.

I’m 75 and am resigned to living out my days doing only things I love.

I’m wishing you and your husband the peace that can only come from God.

@pspalsy
I’m sorry to hear about your PSP. It must be difficult to deal with.

What testing and treatments have you had so far?

1. https://www.mayoclinic.org/diseases-conditions/progressive-supranuclear-palsy/symptoms-causes/syc-20355659
2. https://www.ninds.nih.gov/health-information/disorders/progressive-supranuclear-palsy-psp
3. https://www.hopkinsmedicine.org/health/conditions-and-diseases/progressive-supranuclear-palsy
4. https://my.clevelandclinic.org/health/diseases/6096-progressive-supranuclear-palsy
5. https://www.nhs.uk/conditions/progressive-supranuclear-palsy-psp/
6. https://www.americanbrainfoundation.org/diseases/progressive-supranuclear-palsy/
7. https://www.americanbrainfoundation.org/diseases/progressive-supranuclear-palsy/
8. https://rarediseases.info.nih.gov/diseases/7471/progressive-supranuclear-palsy/

There are no treatments to help slow PSP down. I've had an MRI done on the cerebellum brain area and upper spine, and it showed a hummingbird outline in the brain, which is a sure sign of PSP.

Thank you! I will pray for you Susan. Prayers can do wonderful things. We can also pray that somehow they find a cure for these deadly diseases.

@dlydailyhope
When you have had all the tests that are available and are given a diagnosis, then you need to do is live your life doing things you love.
There is no cure.
While I can still take care of myself, I am teaching my son how to cook his favorite meals. I’m giving my costume jewelry to my granddaughters etc.