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What if you cannot tolerate any osteoporosis drugs?
Osteoporosis & Bone Health | Last Active: Apr 21 12:52pm | Replies (32)Comment receiving replies
Thanks so much for your reply.
I took Forteo for a few months, besides the chest pain that lasted about an hour after each injection, I felt like I was run over by a truck. Apparently it raised my calcium to dangerous levels and I had to stop taking it.
The first drug I was prescribed was Prolia. I became extremely sick, many infections and I lost 50% of my hair, the Prolia triggered an autoimmune condition called lichen planopilarus, which causes scarring alopecia.
I also suffered 6 pelvic fractures afterwards, these were rebound fractures.
My thoughts are that my body has to adjust to the hormones especially since I am 15 years post menopause.
I’m also thinking do I really want to go through any of this if it’s not going to help with the osteoporosis???
I had no menopause symptoms, I’m only taking this for bone loss.
I never want to fracture again.
Have you fractured?
So difficult to make all these choices about what path to take.
I’ve been dealing with this since 2018, and I’m tired of it.
Replies to "Thanks so much for your reply. I took Forteo for a few months, besides the chest..."
Hi again. Following on from last post we must keep on trying with the BHRT as it seems like our only hope. I am desperate for it to work. My clinic who specifically deals with HRT has recommend to just do the Utrogestan for a short while then introduce the estriadol gel slowly by half a pump T a time until used to it then gradually go up to one pump . Possibly add the testosterone in a month or or so after that . Maybe that will help with the palpitation and dizziness we are getting . I am also in pain constantly with the SI joint nerve pain so dealing with that also. Slightly hyper mobile ( EDS) .
Please see post I sent to tgdesign. It was meant for you also
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Oh so sorry. That sounds so awful 🙁 I get angry to hear this...these drugs can be dangerous and not enough care is given in explaining risks.
I can share some drug horror stories...not osteoporosis drugs, but I suffered some really terrible outcomes from steroid injections given for pain from an injury. I lost teeth, I developed new allergies, got a fungal infection, ended up with stomach surgery...nightmare. I don't think drs know enough about what they are prescribing...some do, but you really have to do your own research I found.
And they don't ever consider size, weight for doses, or male vs female, etc.
I started hormones number one to help at least slow bone loss, because i knew i already had it. I knew I had a hard time with drugs. I wish I'd started sooner really...I think hormone imbalances were affecting my bone/muscle for years even before menopause symptoms really kicked in. They don't teach women well about any of this! Most drs are severely misinformed or have no idea how hormone loss affects every body system.
HRT helped me with sleep, energy, brain fog, heart racing, lowered my cholesterol..the works. But it was a rough road finding the right mix. And I may need to change it again down the road. I've read it's beneficial to start at any age, even if only a very small dose. You start small, work up. There's so many great videos and experts and forums and podcasts out there for menopause, and they do address many topics regarding this. But certainly it's not for everyone.
No thankfully I've not had a fracture...I hope I never do. But I do have a connective tissue disease with weakened fascia, muscle, bone, dura of the spinal cord. I've suffered chronic pain since my early 40s. I had spinal surgery last fall for a nerve root cyst impacting my bladder, causing pain, and pain from that trying to heal. It's hard to stomach taking another medicine to add to the pains you've suffered for so long.