← Return to Your tips on how to live with Lymphocytic Colitis/Collagenous Colitis

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@lija

I am joining as I was diagnosed with lymphocytic colitis at Mayo five months ago. I was prescribed budesonide 3 mg. It has helped. I have just returned to my doctor. He says I will probably need to take this for the rest of my life! I am now down to 1 cap. every other day.

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Replies to "I am joining as I was diagnosed with lymphocytic colitis at Mayo five months ago. I..."

Hello @lija, welcome to Connect. Thank you for jumping in to the conversation on lymphocytic colitis for your first post on Connect. We are glad to hear that the budesonide has helped.

Other than the medications, what other life adjustments have you made to cope with your diagnosis? Are you managing the colitis in any other ways than medications?

Does your insurance cover the expense, as mine was going to charge me $1050.00 3 months. I now purchase in Canada for $97.00

To answer your question, I am watching my diet, excercising, drinking more water and less coffee. No creamer which really gives me problems! I eat lots of salads and vegetables. My doctor advises if I am going to eat them, to steam or microwave instead of raw! Even salads! (Well, I haven't tried salads that way yet!). No skins or rough vegetables. No lactose or histamine releasing foods for awhile or artificial sweeteners except Stevia. Use Mega Spore probiotic (50 billion). Eat chia seeds or psyllium husk and ground turkey breast instead of beef (no red meat). No bread, instead corn tortillas, rice, potatoes, or quinoa. Popcorn for snacks. This is info I received at Mayo. I have just started but am willing to try anything they think will help!! If anyone has any things that help them, please let me know!

I have taken this script, for many years, on and off. At the beginning I’d take a round of it, and symptoms would go away a year , before increasing symptoms. If I’m off the script now ,5 to 9 stools a day😕 any suggestions, get concerned about , side affects, Rheumatoid arthritis.