Connect
Discussion
Comment receiving replies
Replies to "My Doctor has diagnosed me with Essential Tremors. This is much better than having Parkinson’s. I..."
Brain & Nervous System | Last Active: Apr 30 3:03pm | Replies (44)
Comment receiving replies
My Doctor has diagnosed me with Essential Tremors. This is much better than having Parkinson’s. I have been taking Primidone for the tremors for about 6 years. I’m interested in hearing from anyone who may have been diagnosed with Essential Tremor but later was diagnosed with Parkinson’s! And can anyone comment on what they think about being on Primidone for 7 years?
Replies to "My Doctor has diagnosed me with Essential Tremors. This is much better than having Parkinson’s. I..."
I would ask if the Primidone is actually working for you as I was given a low dose of that and it made me drunk walk and didn't help at all. So, I have signed up for a number of studys as there really isn't a cure for them. I have not been diagnosed with Parkinson's, but I do have MS.
Connect
I have been on primidone for about four years. No major side effects. I’ve had essential tremor since my 30s and I’m now 68. But in the last year and a half they’ve got exponentially worse. Last November I was diagnosed with functional neurological disorder known as FND. This disorder is a neurological disorder of the brain and bad tremors are a part of it. So my worsening in my tremors has been caused by FND. I can’t write well at all, and I can barely get food to my mouth. I’m trying physical and occupational therapy. Has anyone else had a diagnosis of FND? It’s got a lot of nasty things associated with it.