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Focal awareness seizures or auras?
Epilepsy & Seizures | Last Active: Oct 22 10:00am | Replies (54)Comment receiving replies
She has had a couple EEG's and an MRI and nothing showed up. We are seeing a neurologist at Froedtert Hospital in Milwaukee. We are in the process of trying to figure out if something else is going on. Thank you for your reply! I feel like her Keppra dose is high for the symptoms she was having. We are going to discuss with Doctor but sometimes they are so stuck on protocols.
Replies to "She has had a couple EEG's and an MRI and nothing showed up. We are seeing..."
Hi @kelspal
I have lived with undiagnosed epilepsy for decades. My EEGs and MRIs also showed nothing.
There is a discussion called "First Seizure." here in our group I recommend you read: https://connect.mayoclinic.org/discussion/first-seizure/?pg=2
Have a good day!
Chris (@santosha)
Hello @kelspal
It has been a while since I last heard from you.
How did your appointment with the neurologist at Froedtert Hospital in Milwaukee go, and how is your daughter doing?
Chris
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My daughter was treated at Froedtert in Milwaukee for the last three years, until we went to Mayo. Her issue is unique-she has an encephalocele in her brain that is causing the seizures and Froedtert did find that but they insisted the seizures weren't being caused by it and Mayo has proven otherwise. That was my main concern all along-that they were stuck on protocols and not looking at my daughter's situation individually. I personally believe that practice has sprung from insurance companies only paying when protocol is followed and people suing when things go wrong. This is an article on PNES which is the type of seizure that is non-epileptic. That said, many people with epilepsy have several EEGs before anything is seen clinically. https://www.epilepsy.com/diagnosis/imitators-epilepsy/psychogenic-nonepileptic-seizures