Anyone else have Anal cancer: What treatments did you have?

Posted by gabyivonne17 @gabyivonne17, Apr 4 10:15am

Anyone had anal cancer? And what treatment?

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I was diagnosed with squamous cell rectal cancer which is treated like anal cancer. I did the Nigri protocol which was 30 radiation and chemo- mitomycin and fu-5 which was a four dat drip at the start of weeks one and five. Some advice: make sure you are putting the ointments on early and often. If your oncologist has not recommended some, please ask. Get “period” underpants, they will help with leakage. Drink lots of water, with electrolytes and as much protein as you can. Let your medical team know everything, no matter how trivial. Everything will be fine, I am praying and cheering for you.

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Is there anyone that shall help me to understand why the - CEA- reference values between rectal and colorectal differ so much?

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@hopenjoy2024

I was diagnosed with squamous cell rectal cancer which is treated like anal cancer. I did the Nigri protocol which was 30 radiation and chemo- mitomycin and fu-5 which was a four dat drip at the start of weeks one and five. Some advice: make sure you are putting the ointments on early and often. If your oncologist has not recommended some, please ask. Get “period” underpants, they will help with leakage. Drink lots of water, with electrolytes and as much protein as you can. Let your medical team know everything, no matter how trivial. Everything will be fine, I am praying and cheering for you.

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would add one more thing got your list hopenjoy2024.
if you can get one a bidet is very helpful. there are cold water ones that just attach under your toilet seat as well as battery operated ones (good to carry with you) The warm water ones require electricity to be available.
I have both the cold water one in one bathroom and a warm one in the other.
I regularly use both. You get used to the cold one. not an issue.
before I had either I used a sitz bath regularly. It was not as painful as I've heard from others, but I was careful to keep Lidocaine cream handy and not wipe hard with toilet paper.
adult pull ups for nighttime use are also a good thing to have handy.
Keeping positive thoughts.

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@middlealex

Is there anyone that shall help me to understand why the - CEA- reference values between rectal and colorectal differ so much?

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Not 100% sure, but it may be that in general, anal cancer is squamous cells and rectal cancer is adenocarcinoma. See https://pmc.ncbi.nlm.nih.gov/articles/PMC5224838/. For me I had a large tumor in the rectum and the initial colonoscopy indicated a small polyp in my anus as well. The histology indicated squamous cells. The oncologist had me retested because the treatment is very different and she wanted to make sure they did not get the sample from the polyp- the tumor and polyp were not adjacent and separate.

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