4/23/24 First lumpectomy to remove PLCIS, they found a grade 1 invasive lobular carcinoma in the center and it was all removed but the surgery couldn't get clear margins. 3 things that I could do. 1) 20 min surgery to get a lymph node. 2) Lymph node and clear margins. 3. Mastectomy. Then 5/10/24 I ended up with Hematoma surgery from a popped stitch. (Don't sneeze) They got a lymph node (and it was neg.) Still no clear margins of PLCIS. 7/18/24 Surgery is scheduled for Mastectomy. ** And that's almost the end of my story. augmentation both breast. The Oncotype test came back insufficient amount to complete test. So in month I have surgery.
I am so sorry for such a challenging journey for you:(! Life throws us lots of "sneaky" curve balls at times, isn't it?!!
I am comforted by the fact that the lymph node that they took out was negative. Thank God! My prayers will be with you during your surgery on 7/18/24. Best wishes to you for a speedy and full recovery to a healthy and joyous future!
I'd like to extend a warm welcome to the group and express my deep empathy regarding your recent diagnosis of LCIS. I personally was diagnosed with LCIS in February 2023 and subsequently underwent a stereotactic biopsy of my right breast. I had a nurse present in the room to help ease my anxiety, and the doctor showed great compassion throughout the procedure. Following the biopsy results, the doctor informed me that I needed to proceed to phase 2 of the process, which involved a lumpectomy with wiring. I understand that this can be an intimidating process. I received the results of the lumpectomy on July 31, and thankfully, the condition did not progress to DCIS. While Tamoxifen was recommended, the doctor decided to monitor me first before prescribing it.
Hello! How are you coping with everything right now? My wife has just been told that she has Lobular Neoplasia and we are awaiting on the results of the 2nd biopsy.
I was diagnosed with invasive lobular carcinoma in Dec. 2023. I also have PLCIS (Pleomorphic LCIS). I had a lumpectomy, but the margins were not clear. I understand that with classic LCIS this would not be a big concern, but with PLCIS, the margins must be clear. So now I am trying to decide between another lumpectomy plus radiation OR a mastectomy. (I am not considering a double mastectomy for now, although I am waiting for results of gene testing.)
I would LOVE to hear from anyone with PLCIS. It accounts for about 5% of lobular cancers, and lobular are only 10 - 15% of breast cancers, so it's rare. Thanks!
@dlst, I had a needle biopsy due to my mammogram showing an architectural distortion. The pathology report found LCIS with micocalcifications. I am having an excisional biopsy on Wednesday. The fact that the LCIS is associated with a sclerosing lesion and microcalcifications makes me wonder if it is PLCIS or FLCIS. Can I ask you if you were diagnosed with PLCIS after the needle biopsy or after an excisional biopsy? I read that classic LCIS is not typically associated with microcalcifications or a lesion. Thanks!
Did you decide what to do? Did you go go with another lumpectomy w/radiation or a mastectomy?
@dlst, I had a needle biopsy due to my mammogram showing an architectural distortion. The pathology report found LCIS with micocalcifications. I am having an excisional biopsy on Wednesday. The fact that the LCIS is associated with a sclerosing lesion and microcalcifications makes me wonder if it is PLCIS or FLCIS. Can I ask you if you were diagnosed with PLCIS after the needle biopsy or after an excisional biopsy? I read that classic LCIS is not typically associated with microcalcifications or a lesion. Thanks!
Did you decide what to do? Did you go go with another lumpectomy w/radiation or a mastectomy?
Hi! I went with a second lumpectomy and radiation. I am happy with the results, and so far, no indication of any cancer remaining. I am taking Anastrazole, and amazingly have had no serious side-effects. That said, everyone needs to decide for herself what course to take. I wanted to preserve my breast because my husband and I are still sexually active, and a mastectomy removes all nerves and nipple. (Forgive me for being so plain, but that was definitely a part of my decision.) If that is not a concern for you, a mastectomy could give you more peace of mind. I will say that the radiation was not painful or even that inconvenient (I only live 20 minutes away from the radiology office). The worst side effect has been dry, itchy skin, but once I found the right lotion, that has gotten better. Good luck, whichever path you choose!
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Dear @gammareys:
I am so sorry for such a challenging journey for you:(! Life throws us lots of "sneaky" curve balls at times, isn't it?!!
I am comforted by the fact that the lymph node that they took out was negative. Thank God! My prayers will be with you during your surgery on 7/18/24. Best wishes to you for a speedy and full recovery to a healthy and joyous future!
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2 ReactionsHello! How are you coping with everything right now? My wife has just been told that she has Lobular Neoplasia and we are awaiting on the results of the 2nd biopsy.
@dlst, I had a needle biopsy due to my mammogram showing an architectural distortion. The pathology report found LCIS with micocalcifications. I am having an excisional biopsy on Wednesday. The fact that the LCIS is associated with a sclerosing lesion and microcalcifications makes me wonder if it is PLCIS or FLCIS. Can I ask you if you were diagnosed with PLCIS after the needle biopsy or after an excisional biopsy? I read that classic LCIS is not typically associated with microcalcifications or a lesion. Thanks!
Did you decide what to do? Did you go go with another lumpectomy w/radiation or a mastectomy?
Hi! I went with a second lumpectomy and radiation. I am happy with the results, and so far, no indication of any cancer remaining. I am taking Anastrazole, and amazingly have had no serious side-effects. That said, everyone needs to decide for herself what course to take. I wanted to preserve my breast because my husband and I are still sexually active, and a mastectomy removes all nerves and nipple. (Forgive me for being so plain, but that was definitely a part of my decision.) If that is not a concern for you, a mastectomy could give you more peace of mind. I will say that the radiation was not painful or even that inconvenient (I only live 20 minutes away from the radiology office). The worst side effect has been dry, itchy skin, but once I found the right lotion, that has gotten better. Good luck, whichever path you choose!
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