I was diagnosed with SC tongue CA 2 .5 years ago followed by partial glossectomy and flap graft, then radiation for 6 weeks. More than 40 nodes were removed from my right neck with only one being positive. I had no significant risk factors other than a sibling with tongue CA. The most traumatic part of treatment was post radiation side effects including significant oral pain. Magic mouthwash and Hydrocodone did not give adequate relief, so finally I was placed on long acting morphine that did relieve the severe mouth burning. I was weened off of morphine after 6 weeks with no issue. Subsequently, I learned how to eat solids again but had some limitations with chewing on one side as a molar became loose, then eventually fell out. I continue to have severe dry mouth especially at night with mouth breathing, some difficulty with large pills, too big of food pieces and occasionally choke just on liquids. I find that xylogel works the best for the dry mouth. My speech is slightly affected but can be understood for the most part. I have experienced new tongue pain far posterior to the the site of the original ulcer that was on the lateral mid side of my tongue. It is especially uncomfortable with solids sliding past that portion of my tongue and aggravated with talking. CT and MRI recently are negative, as well, as having no findings on the oral exam by my surgeon. I am awaiting the next steps to follow up. In addition, I am dealing with one more loose molar that has been shaved off to the gum line to enhance cleaning that tooth that had been surrounded by an inflamed gum. Eating has changed again to pureed foods or very soft foods to reduce pain with swallowing. I have been told that on occasion there may be unexplained oral pain following radiation. One caveat I learned after the radiation treatment that is, don't hesitate to seek adequate pain treatment if the initial medications are not doing the job. The other caveat is that the water pick became my new best friend using it after every intake along with brushing with a rodadent TB. Taste has change a lot, especially sweet flavors. I may get a burst of flavor with the first one or 2 bites then it is very blunted. I can distinguish non sweet foods but some may be more over powering than before. I tolerate very few spices, especially hot spices. ETOH and peppermint are absolutely not tolerated. Even things like cinnamon or garlic applied too heavily will burn my mouth. It's been trial and error for many foods making eating out a considerable challenge. By joining this group, I hope to give some insight perhaps and learn from other's experiences. It has been a difficult journey for me, so when I say I understand at least some of your difficulties, it is coming from a pace of personal experience and empathy.