Does anyone feel like giving up ?

Posted by hmbrglr @hmbrglr, Apr 12 2:00pm

Idk. I am being honest I am stressed out o Dr the thought of taking any of these meds. The drs tell me not to quit but I am 72 and I have pain that I’m told doesn’t cause osteoporosis. My Dexa score is 4 with no broken bones to date. I exercise ‘ take all the required vitamins. I this past year snd a half have
Made me mentally confused ,

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@jbones

I do get weary. I just look toward the next day and promise myself that I will add a few more steps to my exercise routine. Also, I try to think of something I can do for someone, like calling a friend or relative who might like to hear from me. These small things help me with my mental woes for the day. I try to take my condition in small chunks. The whole of it all is way too much. I was inspired by hearing someone say, "it's hard by the yard, but a cinch by the inch.

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Thank you. That’s good advice.

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@hmbrglr

That was recommended to me Twice. I think the Dr said he was hesitant because of possible heart issues. I am becoming g so confused.

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The heart issues are with Evenity. It used to be bone cancer with Forteo, but that caution has been withdrawn after 22 years of real world experience.

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@hmbrglr you are 72 and giving up is not what you want to do. One day at a time. The best thing is writing here, and getting feedback from others who have had the similar issue.

I am 75 and have dementia. It’s not curable so I am stuck, but not “out”.

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I'm so sorry you are struggling with this. If I had your T-score, I would consider taking the meds. I am off all meds right now but my T-scores are much lower (-2.2) and I'm 9 years younger than you. I am watching and waiting and will assess year by year. I can only have a DEXA every two years per my insurance but I may pay for one later this year to see how I'm doing.

It's a frustrating disease for sure. Hang in there.

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@kallettla

It is hard. Feeling like giving up is a sad and bad feeling. I am sorry you have the thought of giving up. I have had many illnesses in my life and sometimes I just take one step forward, one step forward...and fortunately have always gotten through eventually. Chronic Lyme disease and other tick illnesses (30 years misdiagnosed and Drs told me I was crazy), broken hip, cancer three times.

Osteoporosis is scary and I have had the feeling of giving up, but I am not going to yet because I am too scared to give up. I feel fortunate I live in a time when we can do something about osteoporosis, and fortunately I haven't had very bad reactions to the meds. I know some people have, and it is just awful.
There is a lot out there that can help, not much without potential side effects. Not everyone gets them. There are more medications coming down the pipeline.
I sat and researched, meanwhile getting enough calcium, D and K3 and exercise as much as you are able.

There is a man on here who did a super YouTube video explaining the drugs and what order to take them in. I depend on that as a blueprint. He has a vested interest.

Exercise and good nutrition is the basis for good health. It helps reduce inflammation. That is my focus now. I guess to get through what ails me, I research, and try to figure out my plan to move one step forward, even if it is small, like heel drops, just anything to make me feel like I have some control. After I research, I take the attitude, no guts, no glory, and take the plunge. Osteoporosis is hereditary for me and if I don't take the plunge, I will end up like people before me.

I also started yoga and that made me not so achy, by stretching. I lift weights, but I was very tight. I just started with daily yoga stretches. It helped me sleep better at night because pain didn't wake me up. And doing it daily, I see progress. If I don't do yoga, I wake up in the middle of the night achy, so I keep it up.

I hope you can get in a better place. Please remember not everyone gets bad reactions. I just had a bad reaction to Fosomax and it was temporary. Evenity and Reclast were ok.

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Could you please provide a link to the You Tube video you mentioned?

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@annar

I’ve told my story here before and I will keep telling it.
I had a Reclast infusion 12/12/24
It is now April and I am still having dizziness and heart rate issues. I had an awful response to this drug and was in the ER 3 times in one week. Started with the flu like symptoms which they say are normal to passing out within 48 hrs of getting it
I had acute colitis, severe esophagitis. I lost 10 pounds in two weeks and was out of work for almost 2 months.
I have tons of medical bills and issues I have never had before. Thank God I was able to get through most of this. I’m still working on the dizziness and heart rate issues. Although these types of terrible reactions are rare. They do happen. I am having a brain MRI on Tuesday just to make sure the dizziness is not from any other source.
I was a health 64 yr old woman and was frightened into picking a drug for my bone density. By all accounts Reclast is the lesser of all the poison. Well it is not !
When I scheduled my MRI scheduler told me it is not the first time she heard this story. So what does that tell you!
The best advice I can give is if you must choose something, go for a daily med. at least this way you have a bad side effect, you can stop it and will dissipate out of your body. I am stuck with this in my body for a good year anyway. Never again. Diet and exercise will be the key. I would rather take my chances.

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@annar Thank you for sharing your story! I’m so sorry your experience has been so awful. You mention Colitis and Esophagitis. Are you saying these conditions were brought on my the Reclast infusions?

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@susanjohnston

Could you please provide a link to the You Tube video you mentioned?

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@annar

I’ve told my story here before and I will keep telling it.
I had a Reclast infusion 12/12/24
It is now April and I am still having dizziness and heart rate issues. I had an awful response to this drug and was in the ER 3 times in one week. Started with the flu like symptoms which they say are normal to passing out within 48 hrs of getting it
I had acute colitis, severe esophagitis. I lost 10 pounds in two weeks and was out of work for almost 2 months.
I have tons of medical bills and issues I have never had before. Thank God I was able to get through most of this. I’m still working on the dizziness and heart rate issues. Although these types of terrible reactions are rare. They do happen. I am having a brain MRI on Tuesday just to make sure the dizziness is not from any other source.
I was a health 64 yr old woman and was frightened into picking a drug for my bone density. By all accounts Reclast is the lesser of all the poison. Well it is not !
When I scheduled my MRI scheduler told me it is not the first time she heard this story. So what does that tell you!
The best advice I can give is if you must choose something, go for a daily med. at least this way you have a bad side effect, you can stop it and will dissipate out of your body. I am stuck with this in my body for a good year anyway. Never again. Diet and exercise will be the key. I would rather take my chances.

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to annar
it is so important to hear experiences that can be yours also. Thank you! I too was prescribed Reclast, but had to postpone it because I have broken my knee. This fracture is seen as not connected with OP, but I had much pain and could not imagine to have side effects from taking Reclast infusion. OP did not influence the healing of knee fracture (as I thought) in my case.
But now, with my DEXA - 3, I have to start taking some OP medicine. As many other patients here, I am stressed and confused. Your advice about daily med is very useful.

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@kallettla

It is hard. Feeling like giving up is a sad and bad feeling. I am sorry you have the thought of giving up. I have had many illnesses in my life and sometimes I just take one step forward, one step forward...and fortunately have always gotten through eventually. Chronic Lyme disease and other tick illnesses (30 years misdiagnosed and Drs told me I was crazy), broken hip, cancer three times.

Osteoporosis is scary and I have had the feeling of giving up, but I am not going to yet because I am too scared to give up. I feel fortunate I live in a time when we can do something about osteoporosis, and fortunately I haven't had very bad reactions to the meds. I know some people have, and it is just awful.
There is a lot out there that can help, not much without potential side effects. Not everyone gets them. There are more medications coming down the pipeline.
I sat and researched, meanwhile getting enough calcium, D and K3 and exercise as much as you are able.

There is a man on here who did a super YouTube video explaining the drugs and what order to take them in. I depend on that as a blueprint. He has a vested interest.

Exercise and good nutrition is the basis for good health. It helps reduce inflammation. That is my focus now. I guess to get through what ails me, I research, and try to figure out my plan to move one step forward, even if it is small, like heel drops, just anything to make me feel like I have some control. After I research, I take the attitude, no guts, no glory, and take the plunge. Osteoporosis is hereditary for me and if I don't take the plunge, I will end up like people before me.

I also started yoga and that made me not so achy, by stretching. I lift weights, but I was very tight. I just started with daily yoga stretches. It helped me sleep better at night because pain didn't wake me up. And doing it daily, I see progress. If I don't do yoga, I wake up in the middle of the night achy, so I keep it up.

I hope you can get in a better place. Please remember not everyone gets bad reactions. I just had a bad reaction to Fosomax and it was temporary. Evenity and Reclast were ok.

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@kallettla, thank you for the link to the video!! Very informative. I learned a lot.

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