← Return to Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

Discussion
Comment receiving replies
@nohrt4me

Just a couple general comments about fatigue, being a drama queen, and HU:

1. If you have a heart issue on top of ET, I guarantee you will feel more tired. ET is already a strain on your body. Any other illnesses or conditions or worries add to it. I have a wonky mitral valve and scoliosis. I am aging. I am worried about my husband's cognition. Cumulatively that adds up, even if I eat well, exercise, and get good sleep. We learn to pace ourselves, ask for help (hard!), and live with a little less perfection.

2. Urging people to be strong, fight, stay positive, or "you got this" works for some people. We're all different. But I always hear that stuff as criticism: "Suck it up, Buttercup! You're falling down on the job. You're making everybody feel bad by talking about being sick. Quit bitching and get in the Positivity Parade." If you can't be honest about how crappy you feel some days on here, that's another strain and source of stress.

3. HU does make some patients feel better for awhile. I was one of those lucky ones for several years. It makes some people sick. Nobody knows why people have such differing response to it. That's cuz research goes into new drugs that hardly anybody can afford, not into helping people cope with old ones that most people take. You can actually improve life for others by being honest with your hemo about how you feel. If they hear it enough, maybe the palliative care will improve!

I hope everybody reading this has a good moment today--pet the cat, watch the birds, read a book, see a good show, eat something yummy!

Jump to this post


Replies to "Just a couple general comments about fatigue, being a drama queen, and HU: 1. If you..."

Beautifully said, nohrt4me.