← Return to PMR/GCA patient asking about headaches

Discussion
scottschooley avatar

PMR/GCA patient asking about headaches

Polymyalgia Rheumatica (PMR) | Last Active: Jun 13 6:38pm | Replies (17)
Comment receiving replies
Profile picture for John, Volunteer Mentor @johnbishop

Hello @scottschooley, Welcome to Connect. The headaches and symptoms moving around and behind the eyes seem like they could be a serious GCA symptoms. @jabrown0407, @tsc and others have discussed headaches in other GCA discussions and may have some experience or information to share with you.

Have you discussed the symptoms with your rheumatologist or doctor?

Jump to this post

Replies to "Hello @scottschooley, Welcome to Connect. The headaches and symptoms moving around and behind the eyes seem..."
babycakes1968 | @babycakes1968 | May 5 2:36pm

I have GCA and PMR , YOUR SYMPTOMS are right on the diagnosis for both. Eye specialists are an important part of your treatment. Rheumatologist treats GCA because it’s autoimmune SO IS PMR. ON MY 4th month of IV Actemra.I didn’t not feel great , just a small improvement. I have head aches daily also. I call my “ hit the in the head with a hammer headache”😣 sympathize with you. It’s like an endless Roller Coaster , Dr. try to help but it’s so complicated. Wish you well

VIEW AND REPLY