← Return to Has anyone been dx with Myoclonus? If so, what was the treatment?

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@lcb24

It seems to me that the diagnosis of myoclonus, is given when symptoms don’t fit “neatly” in to other more common neurological conditions. It is what my neurologist thinks I have, but is not sure. It has been one of 5 or 6 things she has tested me for. I have had multiple EMGs and full imaging of brain, nerves, spine, and blood vessels. Even a 96 hour, in home, video EEG study with cameras. I knew they would not see a seizure while I was confined to my house for four days. It only happens when I am walking or active. And while I have no seizure disorder based on that test, I am on keppra (which is an anti-seizure drug) for what starts as my right quad firing, weakness and the resulting, intermittent falling. Getting to a dosage of 2,000 mg a day has eliminated the falls, but having to deal with side effects like constipation suck. It is very frustrating when no one knows what you have. I had a second opinion at the Yale Mobility Clinic . But still no answers! And I’ve spent hours trying to research anything online that seems like what I have.

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Replies to "It seems to me that the diagnosis of myoclonus, is given when symptoms don’t fit “neatly”..."

Hello @lcb24 and welcome to Mayo Connect. It sounds like you have spent a lot of time trying to get a correct diagnosis for your problems. I understand that neurological problems can be frustrating for both the patient and physicians. Often, neurological problems do not fit into a neat diagnostic box. From your post, it sounds like the Keppra has helped eliminate the falling. Is my understanding correct?

You mention, "right quad firing, weakness and the resulting, intermittent falling." Could you explain this a bit more? I'm also wondering how many years have you been experiencing these neurological symptoms?