Does EBV cause Neurological Symptoms?

Posted by minnerhead1 @minnerhead1, Mar 13, 2023

Hello! I am a 44 year old male and have recently been hit hard with neurological symptoms that I am wondering have been caused by EBV flare up.

My first symptoms were 14 years ago. I was under a ton of stress at work and had had some stressful life events. I would come home from work with an “out of body” feeling just from stress. One day at work I felt my skin crawling and then started having Fasciculations all over my body. My neck was extremely tired with a feeling that I needed to rest my head on my hands to hold my head up. I had a feeling as though I couldn’t talk even though I could. I also noticed that my muscles would shake upon use. I was still strong but lifting things would cause a shake in them. I went through various tests (mris, EMG, etc) and everything came back normal. I was finally diagnosed with fiber neuropathy of the brain. They said it might get better but maybe not.

I am a performer and sing at various places. So through the years I have noticed that when I have a stressful performance (singing at NBA games, events, etc) I have attacks on my body afterwards (during periods of high stress). And it seems to damage the area that the attacks happen. It’s like I will get hammered hard by a twitch that might stay for a couple Days on one area, but then it will stop and then I recover. Well about a month and a half ago I had to sing at a funeral and then lead an event the following day which was big time stress. Afterward I had another attack and my arm and leg had weakness which was normal. But, this time it didn’t go away after 3 or 4 days and I panicked. I had a rush of anxiety go through my entire body and then started having intrusive thoughts that are clearly not me.

Current symptoms are:

Feeling of weakness and literal numbness in my toes and the tips of my fingers, more on the right side. My tongue gets sores on the end and is numb. I have swollen lymph nodes that come and go under my arm/arms every 2-3 months. Brain fog, dizziness, shakiness when I use my muscles (lifting),aura migraines, trouble swallowing (which really scares me). A feeling of slowing down in my whole body, feels harder to smile, etc. About a year ago a wellness clinic asked if I I had had mono and I did at 16 years of age. They did the IgG, etc band test and said that it was positive for reinfection. They retested 6 months ago again and said it was still activated. I am currently seeing a neurologist who is doing an MRI in a couple of days They also have me set up to do an EMG test in all 4 limbs in April. I told them about the EBV reactivation but they don’t believe it. They said if you’ve had mono before everyone will have positive bands.

They think it could be BFS that is aggravated by stress at this point, but, they can’t explain the sores or swollen lymph nodes. And my numbness and symptoms aren’t going away like they normally do.

My thyroid panel was low at my primary care doctors, but they acted like it was nothing as one marker was actually in the red and the other two markers were at the very bottom But within range (3rd generation TSH).

Has anyone had symptoms like these from an activated EBV case? I have included a picture of the round tongue sores So weird.

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You and I both. I feel like the MD's today got their license out of a cracker jack box. I'm pushing full speed now, so hopefully someone will get it right.

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I wish you best of luck please keep us updated

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Profile picture for abbynormal63 @abbynormal63

Thanx for the reply ! I have a lot going for me . Most importantly my doctor was able to diagnose me by constant blood work due to the upper respiratory and asthma that just wouldn’t let up the first year and they diagnosed my first case of mono immediately. He let me know after that the other stuff I was dealing with didn’t worry him because he could control asthma
And bronchitis but the mono was concerning. It took another 8 months or so and bam it was back . Do about 2 years for a diagnosis. My husband had been through a lot because the side effects from the drugs the first year really made me paranoid and nervous . Not working did a number on my head . I was 55 when all
This started and had gone into school debt for my associates had compleated my 4000
Hour internship working with felons in a rehabilitation prison and acquired my Texas license. I did not want to stay at home I’ve always worked . So that was a huge adjustment the first year . Not n being able to keep up with my grandsons and have them at my home on weekends if they had anykind of sniffles etc . I’ve talked enough about myself . Let me know what your willing to share .

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Hello, abbynormal63.
I am so sorry such a long time has passed. It has been difficult. If you read this, please let me know.
I hope you are doing better.

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