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Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

Blood Cancers & Disorders | Last Active: 2 days ago | Replies (43)
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@anavleek

Hi,
Is this ‘ JAK 2 positive result only attributes to a 7% chance that it is the cause of high platelets. ‘ only for your case only ? Or general?
I have the CALR positive and platelets are at 607 last time we checked. Trying to find out what % of the positive CALR contributes to the cause of high platelets.

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Replies to "Hi, Is this ‘ JAK 2 positive result only attributes to a 7% chance that it..."
kit491903 | @kit491903 | 5 days ago

I wrote a correction today regarding my lab results that I misunderstood .

I incorrectly wrote that there was a 7.1% probability that JAK2 caused the high platelets.

My lab results stated JAK2 at 7.1% . This actually means that the mutation was found in 7.1% of the blood cells and it has nothing to do with the chance aspect of my diagnosis. That value is considered "low positive" . According to DR Google research 10-15% JAK2 mutation is a general starting point for taking action.

My doctor did not discuss the lab results with me during our appointment. I found the results on my patient portal and asked DR Google what it means.

Check out your lab results and maybe there is a positive percentage shown with the CALR results.

I hope this helps. I find this post to be useful for understanding personal reactions to medications and general tips.

I am already working on a 2nd opinion with a doctor at Mayo for understanding medical questions and medical advice.

Good luck and sorry for the confusion.

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