@leellen Welcome to Mayo Clinic Connect! As you can see, your post spurred a few responses, so that's a win for you.
https://connect.mayoclinic.org/discussion/myasthenia-gravis-9/
Is but one of the myasthenia gravis discussions in the autoimmune support group. If you go to that group, and type in that term in the search bar, you will see all discussion with that condition, plus all comments. Click on the "discussions" link and I bet you will find information that will be useful to you.

How long have you lived with myasthenia gravis?
Ginger