Has anyone been diagnosed with Abdominal Wall Pain?

Posted by rufus444 @smiles444, Dec 15, 2017

Starting on May 1, 2017, I began having abdominal pain that wraps around to my left back. The first time it happened, I went to the emergency room because I thought I might have an apendicitis. The hospital did a CT scan of my abdomen, everything looked okay. I went to the emergency room several times over the summer with excruciating abdominal and back pain. I had a hida scan done, a colonoscopy and an endoscopy and CT and ultrasound scans of my abdomen. Everything looked normal. In September of this year, a doctor at Mayo felt the area on my abdomen and did a Carnett's test. He suggested it could be abdominal wall pain. I have had two steroid injections and I am still having pain in the same area. Has anyone out there had this type of diagnosis and still having pain?

Interested in more discussions like this? Go to the Digestive Health Support Group.

anniesezu812 | @anniesezu812 | Apr 12 9:08pm

Hello,
I responded to a post somewhere here..don't see it... I have been suffering from suspected ACNES due laparoscopy in 2016. Clev Clinic Dr only person in South Florida who seems knowledgeable of it but can't help further.
I had a Spinal Cord Stimulator inplant 6 months ago after developing severe back pain , within 4 weeks my Nerve pain was excruciatingly to point I became bedridden mostly. I switched it off.
Drs still refuse to accept it exacerbated my pain but I'm just post a Nerve Conduction Study ( shot up with strong electrical current) most horrendous pain of my life. Took numerous days to recover. Preparing my records for Dr Gillespie. This condition is truly destroying my body. Am almost 6 months on a soft/ liquid diet/ can't tolerate normal diet due severity of digestive pain.
It would be nice if "posters " report back if they get help and what worked. I for one would be very interested to know if and how people get resolution.
This is a devastating condition.

ggr | @ggr | Jul 24 8:00am

In reply to @grammajackie "Look into Mast Cell Activation Syndrome. It was a life saver for my grandson after 2.5..." + (show)

Yes! My daughter was diagnosed about 6 years ago after testing for Crohn's and other digestive disorders. She is doing really well on the daily meds. I have mentioned mast cell activation several times on this thread but don't get much response. There simply are not enough doctors who know what it is. They diagnose Sibo and IBS (which I think is just a symptom of an underlying diagnosis). There is a good deal of info online with a google search. What was the specialty of the doctor who diagnosed your grandson?

Lisa Lucier, Moderator | @lisalucier | Jul 24 8:37am

In reply to @ggr "Yes! My daughter was diagnosed about 6 years ago after testing for Crohn's and other digestive..." + (show)

Hi, @ggr - here are a couple of Mayo Clinic Connect discussions on mast cell activation:

- Mast Cell Activation https://connect.mayoclinic.org/discussion/mast-cell-activation/

- Mast Cell Activation Syndrome or Histamine Intolerance https://connect.mayoclinic.org/discussion/mast-cell-activation-syndrome-or-histamine-intolerance/

bluedog35 | @bluedog35 | Jul 25 10:59am

In reply to @ggr "Yes! My daughter was diagnosed about 6 years ago after testing for Crohn's and other digestive..." + (show)

How dod they diagnose it? I have been dealing with abdominal pain for the last 10 months and all the tests other than a stool test that showed exocrine pancreatic insufficiency and have been taking enzymes but still having excruciating pain and nausea.

ericawiersfischer | @ericawiersfischer | Jul 25 11:30am

In reply to @bluedog35 "How dod they diagnose it? I have been dealing with abdominal pain for the last 10..." + (show)

In my case it was diagnosed by Carnett's test and treated with trigger point injections. Works pretty well, but where my gall bladder was still just never seems to get completely better. It is usually from abdominal surgery. I had 2 c-sections, multiple endoscopes, EUS, and so many ERCP's, and then splanic nerve ablation, gallbladder removed, and cervical branch ablations.

ggr | @ggr | Jul 25 1:46pm

In reply to @bluedog35 "How dod they diagnose it? I have been dealing with abdominal pain for the last 10..." + (show)

I honestly don't know. There is not a blood test. She was diagnosed at Mayo Scottsdale, and there were lots of tests. She was also diagnosed with POTS and Ehlers Danlos. Those three disorders tend to go together. I think it is ruling out other things, looking at history, and making the connections to the other disorders.

medw123456 | @medw123456 | Jul 30 7:23am

In reply to @jgroudan "Hello spirit22, It sounds very much like you are suffering from Abdominal cutaneous nerve entrapment syndrome..." + (show)

Hi Jeff. I am diagnosed with CAWP - Chronic Abdominal Wall Pain, however, my GI who did the Carnets Test says he does not handle that. I do TPI but they don't work. I have had several abdominal surgeries and have 3 "hot spot" trigger points in abdomen and 1 in my upper flank back. Is a general surgeon my best option to get help and more testing to nail down the correct issue and maybe better pain treatment?

View More View Less

Please sign in or register to post a reply.