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Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

Blood Cancers & Disorders | Last Active: 12 hours ago | Replies (89)
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Profile picture for anavleek @anavleek

Thanks for your input. Yes it is scary , am I going to have to a stroke, heart problems or whatever?!? . I just met this doctor not too long ago through my medical group.
I’m just a little bummed out with so much different information !

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Replies to "Thanks for your input. Yes it is scary , am I going to have to a..."
drbart86 | @drbart86 | Apr 12 5:42pm

As I noted all circumstances are different. My doc notes as I don't have a history of clots, even though over 60 now and diagnose 8 yrs ago my overall risk is not super high. That being said I can tell progression in the symptoms associated with it. But staying mentally and physically active really helps. Live your best everyday, and I have also found it helpful to have a couple of people with MPNs (not ET) that we can get together and commiserate with. As this is not a really visible disease (this is good and bad) sometimes people don't realize or remember your situation. Stay strong

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