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Good morning, I was diagnosed with MGUS at 36, it is important to understand that all the research focuses on people in their 60’s and 70’s. they say 1% chance of progression every year to MM. so you age should factor a lot of decisions you make. I’m tell everyone to get a Baseline! finding MGUS in your 30’s can change things. Also underlying factors can change you Immunoglobulins so don’t freak it they are raised. But do you reach on a Hemonoc. Find one that specializes in MM and MGUS. Also make an excel spreadsheet sheet of the key blood work numbers so you can see any progression or plateau. I have my M-spike, IGG,IGA, Kappa, K/L ratio. Etc.
Replies to "Good morning, I was diagnosed with MGUS at 36, it is important to understand that all..."
@dmdinapoli81
thanks so much for jumping in. It's true that most of the research involves older patients. Of course this disorder mostly affects older patients. I'm so sorry that you were diagnosed so early. Since MGUS is usually diagnosed incidentally when something else is wrong and we older folks are more frequent healthcare fliers, I wonder how long I've actually had MGUS. Maybe decades.
You sound very organized and you have inspired me to create some graphs (if I can remember how!)
Another way to keep track of results on all blood urine bone marrow test results is on your chart. Most health institutions monitor you by graphs. Highlighting abnormalities. If you start jumping around to different facilities then this spreadsheet would be good thing.
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Do you have a spreadsheet template you can share? Thanks for your insight.