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Does your oncologist acknowledge that ET may cause bone pain?
Blood Cancers & Disorders | Last Active: Sep 8 9:27am | Replies (30)Comment receiving replies
I have heard of shin pain from others in ET support groups. Seems to have been more prevalent when docs were ordering big initial doses of HU. This stopped when doc's began starting patients on low doses of HU and gradually increasing if necessary.
Not sure how other clinics work this, but at my clinic, if you are taking Besremi or any oral chemo, you get consults with nurse and onco pharmacist. If you are prescribed HU, you get zippo. I got the best info from my plain ol' RiteAid pharmacist. But I had to ask.
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Guess that answers my question. On HU went for blood work every week, then every 2 weeks now every week. Started in May it is Sept the 4th and I last saw the Doctor in May. So all I get is that my blood work is fine come back in a month. So the only questions I get answered are what I find from this web site. I had a episode of AFIB had not had it in 20 years on no meds for it except metoprolol so I saw that AFIB sometimes happens 30 days after starting HU it was almost exactly 30 days after I started the medicine.
Hope this helps someone.