"I think each person needs to really think about what they believe will help them live their best the longest life and not judge others for their decision."

I agree 100%, 1pearl.

MPNs are poorly understood, and it's really difficult to know what's best.

I feel you're saying that I've "spread misinformation." So please allow me to say, my information came straight from my oncologist. Upon diagnosis, he told me that if I didn't take HU, my bone marrow would be depleted. And he warned that bone marrow transplants have a low success rate, just as you have said.

In my own case, HU has brought relief from ET's exhaustion and headaches. For me, it is working.

I understand other doctors say other things, and other people may make different choices.

If my comments have made anyone feel disrespected, I sincerely apologize.