← Return to New MAC treatment options??
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Replies to "@susiespencer When you ask about treatment for your infection, have you had a recent CT scan..."
Hi Sue,
I have a question regarding, "no nebs." Do you mean no albuterol or levalbuterol? Do you use only 7% saline
for daily airway clearance?
Thank you!
Just curious Sue. Did you mean you were only on the BIG 3 antibiotics for 6 months after MAC was cleared? I have been on the treatment for 3 months now, plus Arikayce. I started out with no side effects but in the last 4 weeks have been having almost daily , terrible headaches, some migraines which are debilitating to me. While I have had a history of occasional migraines, nothing like this. Has anyone had chronic bad headaches while on the antibiotics?
Hi Sue- Read that yesterday and again just now glanced at it in reviewing to see if there is anything new on the thread(s). I can't help but zero in on the "living dangerously". Are you referring to no nebulizing or other precautions also. That statement has me curious since reading your much earlier posts in the last year and a half.
Hoping my CScan and sputum test shows improvement this month during my search for a new pulmonologist.
Airway clearance methods are so important for us as is all we can do to help clear the mucus up and out....which also helps with sleeping better at night also for me.
You must be so looking forward to your up coming trip.
Barbara