← Return to Blood Transfusions with esophageal and stomach cancer

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@emersonmoon

The one time I’ve wished we lived closer to the city is now. Cancer care can be difficult when living in a small town. I’ve felt like I was in a fight for my husband’s care since back in February when this basically started for us (he was diagnosed at the end of January). Everyone keeps telling me just to keep advocating. I agree that unnecessary testing isn’t ideal; it just puts your husband through more stress. Do they think the bleeding is most likely coming from a mass at “ground zero”? Maybe they can better explain why they want to do each particular test and you can make determinations from there. You both have a right to know why procedures are being done. I’ve also felt, at times, like my questions and input are annoying to medical personnel, but it’s important to be on top of things and I’m not going to stop. Try to be as nice as you can but don’t stop being proactive in your husband’s care; they have lots of patients but we only have one husband and they are our primary concern.

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Replies to "The one time I’ve wished we lived closer to the city is now. Cancer care can..."

I love that thought process about only having one husband and them having many patients. Yes, his bleed is coming from the tumor eroding through the stomach lining. We already know where the bleed is, and since it has increased in the last week, they are now looking at reevaluating the treatment plan. I am currently not stressed yet, even though I probably should be. I try to be as nice as possible to all the staff. I know they have a demanding job, and like you, if there is a justified reason, I am all on board. Lately, it has felt like it is just for money.