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@naturegirl5

@justbexlo Welcome to Mayo Clinic Connect and to our Gynecological Cancers Support Group. You will get a lot of support here in this Discussion group. I can imagine how worried and frightened you are after getting this diagnosis. I was diagnosed with endometrial cancer (endometroid adenocarcinoma) in 2019. When my doctor called me I could barely understand what he said after I heard the word "cancer". I then spent a weekend of worrying until I saw my doctor again to start planning the referral for treatment. I actually began to feel less anxious once I had the appointment scheduled with the gyn/oncologist and knew more about the cancer as well as what she planned for treatment. In my case that was a radical hysterectomy with removal of uterus, fallopian tubes, ovaries, and cervix.

Here are two websites to read that can offer more information:

Cleveland Clinic: Vulvar Cancer:

--https://my.clevelandclinic.org/health/diseases/6220-vulvar-cancer

Mayo Clinic: Vulvar Cancer

-- https://www.mayoclinic.org/diseases-conditions/vulvar-cancer/symptoms-causes/syc-20368051

When do you see your doctor again to discuss next steps?

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Replies to "@justbexlo Welcome to Mayo Clinic Connect and to our Gynecological Cancers Support Group. You will get..."

I have an appointment with urology today and gyn/onc on Tuesday. I'm scheduled for a PET scan a week from Tuesday.

I've been through the radical hysterectomy due to endometriosis and fibroids. I was told by my doctors then not to worry about "down there." Much of my freak out is due to my mother who passed away in March 2023. She had uterine carcinosarcoma and was dead a month after diagnosis. I get that this is different but it is just playing out so similar.