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Hypertrophic Cardiomyopathy (HCM) | Last Active: May 13 3:10pm | Replies (48)
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I had my first cardiac MRI during the 2 days of tests and interviews immediately before my scheduled septal myectomy. Echoes were used over the 10-15 years from when HCM was diagnosed. One of the effects of HCM is (rarely) sudden death such as with athletes and others who are in otherwise excellent physical condition. A full review at a COE for HCM would be an excellent thing to do in planning your future treatment!
Replies to "I had my first cardiac MRI during the 2 days of tests and interviews immediately before..."
If i remember right they did want to do the cardiac mri back in dec but they said there was so many people having it done that it would be a few months before they could get me in.
They got me in March
And basically the Cardiac MRI comfirmed the same thing the Echo showed
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@brumasterj @walkinggirl
Thanks! Those I spoke with at HCMA were surprised a cardiac MRI had not been ordered yet. Maybe it was because there were talks of surgery.
Spoke with my primary doctor today and he told me to talk to my second opinion cardiologist about referrals. HCMA said they’ll look into my options too.
I have a sense that I’m going to need to pick a new health plan next year and that Kaiser just isn’t going to be the right plan for me in the long run given the specialty needs. Frustrating because the care has been pretty good up to this point, even when I was hospitalized with sepsis last year.