← Return to Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

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anavleek, I hope it's helping you to hear from us! We're living proof that HU works.

Your pharmacist may not know much about HU, because you may be the first person who's ever asked for it. MPNs are really rare. In my little town, neither the pharmacist nor my primary care physician knows anything about ET or HU.

Take your capsule in the way that YOU are most comfortable with. You've gotten some great suggestions already.

I guess I'm a risk-taker! While I always fill my mouth with milk before popping in the capsule, I do take the capsule out of the bottle with my ungloved hands. I've been doing this for 18 months and so far, my fingertips seem fine -- no glowing in the dark.

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Replies to "anavleek, I hope it's helping you to hear from us! We're living proof that HU works...."

Thanks Jane, it is very comforting to have others share their experiences and know you are not alone. I think about it and it’s scary, but I guess if you control the platelet count we are ok.
I still
Haven’t started taking the pill , just getting info to feel comfortable doing so. I have been reading that this is the most common way to reduce the count. Thanks again 🙂 Ana

I took HU , was not told i could t touch it. Now im on OJJAARA that definitely came with warnings and gets shipped in biohazard bags.