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Essential thrombocythemia (ET): When to start hydroxyurea (HU)?
Blood Cancers & Disorders | Last Active: 1 day ago | Replies (111)Comment receiving replies
Thank you so much for your input. Someone else here said not to touch the pill because it is highly toxic, that’s a bit scary. It’s a bit strange my pharmacist didn’t even mention that to me. I am a bit scared to take it, but it seems that is the only treatment for it with my age , 61 . Thanks again any input is much appreciated! Ana
Replies to "Thank you so much for your input. Someone else here said not to touch the pill..."
Hi Ana,
I have never had any issues touching the capsules and I've been taking it over 20 years. I guess you could be more sensitive to it. The instructions , when you look it up online do say not to touch it... I take it once a day and two on Monday, Wednesday, and Friday.
@anavleek I have been taking HU for over 30 years and never had a problem. I pick it up all the time and place it on my tounge then get some water. Maybe I have just gotten used to it. My platelets need to stay under 500K and this week I start on my Besremi injections so I will say good by to HU. It has been a lifesaver for me for so long. Embrace the drug so that it does what you need it to do. None of us expected to end up with these bone marrow proliferations, but the treatments will keep you from having a stroke, which is much worse than the side effects. Good luck and take good care! leene
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If the pill was dangerous to touch, there would be directions given on how to handle it or it wouldn’t be in pill form. This is just nonsense.