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@justbexlo

I was diagnosed today with invasive 3mm deep squamous cell carcinoma of the vulva and vagina. I’m freaked out. It is HPV related.

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Replies to "I was diagnosed today with invasive 3mm deep squamous cell carcinoma of the vulva and vagina...."

Don’t freak out. It is a difficult diagnosis to accept but you will get through this! I had the same cancer one year ago and treated with 33 rounds of radiation, no chemo. Surgery to remove the Spot was not fun, I still don’t wear underwear but feel fine now. I chose to not tell anybody because I don’t like the constant questions and overblown sympathy. But that’s just me you may appreciate support from your loved ones. One year from now you will look back at this time as a bad dream and you will move on!

@justbexlo Welcome to Mayo Clinic Connect and to our Gynecological Cancers Support Group. You will get a lot of support here in this Discussion group. I can imagine how worried and frightened you are after getting this diagnosis. I was diagnosed with endometrial cancer (endometroid adenocarcinoma) in 2019. When my doctor called me I could barely understand what he said after I heard the word "cancer". I then spent a weekend of worrying until I saw my doctor again to start planning the referral for treatment. I actually began to feel less anxious once I had the appointment scheduled with the gyn/oncologist and knew more about the cancer as well as what she planned for treatment. In my case that was a radical hysterectomy with removal of uterus, fallopian tubes, ovaries, and cervix.

Here are two websites to read that can offer more information:

Cleveland Clinic: Vulvar Cancer:

--https://my.clevelandclinic.org/health/diseases/6220-vulvar-cancer

Mayo Clinic: Vulvar Cancer

-- https://www.mayoclinic.org/diseases-conditions/vulvar-cancer/symptoms-causes/syc-20368051

When do you see your doctor again to discuss next steps?

The key is radiation. I also had chemo. The scary part is detection. I found mine myself. It was stage 3 already.