← Return to Anyone have chronic lymphocytic leukemia (CLL)?

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@minglu

I was diagnosed in March. So far, I know that I am Stage 1, but many of my blood numbers are in “normal range.” The Kaiser protocol appears to be “see you in a year” to check again. My wife got the oncologist to agree to checking in six months. Slowly, that punched in the gut feeling is being replaced but it all still feels overwhelming. I remind myself since it’s chronic, I need to find a new balance and that will take time. I want to be angry with someone, but I’m getting used to “sh#@ happens!” So, I’m checking out my holistic approach options in S.F, CA Bay Area to help my body be the best it can be and finding my way back to those activities I can still do, if I rest when there’s a need.
One curious thing. Did anyone else discover that their blood had been routinely being checked for leukemia for several years? Most of my tests said that there were no trends because this was the first test. But one said “Normal” for several years and only this time said “Leukemia.” (I just realized that they could have been checking for anything. Okay, still a mystery, but somehow an easier one to take. They could have been checking to see if hyperparathyroid condition had returned.). Back to waiting for my oncologist to decipher all the blood tests results that came in this week.

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Replies to "I was diagnosed in March. So far, I know that I am Stage 1, but many..."

You also had this before your diagnosis and went about your business in your normal manner. I would suggest returning to that unless you encounter some new problems. One change is mentioning having CLL when filling out medical questionnaires. My oncologist did stress keeping up my immunity via vaccines.