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Polycythemia Vera: Just been diagnosed
Blood Cancers & Disorders | Last Active: 6 hours ago | Replies (421)Comment receiving replies
@momoffivetoo
I think the candid conversations here are very helpful. I too am scared, of the effects of the disease, of the meds, how this disease progresses. And you are right, other cancers develop faster.
I'm having my blood checked tomorrow to see what the platelet levels are. Question for those who have been dealing with this for a while, is it normal to be seen by the P.A. for follow ups?
Replies to "@momoffivetoo I think the candid conversations here are very helpful. I too am scared, of the..."
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I’m dealing with PV for 2 1/2 years now and see my hematologist/oncologist every six months. All my labs and if there’s a dosage change, are dealt with through my My Chart. My Doctor has a great staff and I can always get a nurse on the phone if I have any concerns. The first year is tough mentally and physically. It will get better once your dosage is correct and you get a routine down. For me it was a shocker being just 56 with no other health issues. Also, the expense of all the labs and phlebotomies is very tough even with insurance. I’m grateful that the Hydroxyurea is super cheap and is working for me. It’s been around since the 1960’s and that is good to know as well. Good luck and stay positive!