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@gigi05

@luvs2dance Thank you for sharing. I'm sorry to hear that it has progressed to Myelofibrosis. How are you feeling now? Did your treatment change in any way? Did your weight stabilize?
These progressions are worrisome, and I wonder why they progress when they are being treated with HU.

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Replies to "@luvs2dance Thank you for sharing. I'm sorry to hear that it has progressed to Myelofibrosis. How..."

Yes I stopped losing weight and gained back about half. I am doing pretty well. Functioning as a fairly normal person. Less energy but also trying to remember I am 77 so there’s that too.