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Antisynthetase Syndrome: Anyone else?

Autoimmune Diseases | Last Active: Apr 11 12:53pm | Replies (101)

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@simchaemuna2

I have been told I am in remission also. Been on and still on Cell Cept.
I felt maybe 40% better at times. My mornings much better than evenings. Also I have flareups about every week or so. In fact it seems like we are experiencing the exact same symptoms. Thank you for sharing that, it helps me know how I feel probably is normal. I will be praying for you and I to learn ways help us be more comfortable. I am so grateful for this group. Knowing someone out there knows how I feel, right there is reassuring. I check in and pray for us all daily. Keep the faith all. 🤗❤️🙏🏾

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Replies to "I have been told I am in remission also. Been on and still on Cell Cept...."

I had to stop Cellcept. I had to stop it because it caused anemia, I realized the difficult breathing and major weakness went away, so symptoms were from the drug, not the syndrome Now just on prednisone which I’m tapering off this week. Worried a little bit not to be on any meds, however glad to be free of them.
Wish you well.. keep me posted