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Meeting the liver specialist: What should I know or ask?
Transplants | Last Active: 2 days ago | Replies (18)Comment receiving replies
@melbourneaussie69, I commend for accepting that you no longer can do all of the things that you used to do! And I share your joy at living to see your son get married. It happened to me, too when my son was engaged before my critical health failure, and then I was able to be at his wedding after my transplant.
I can understand how statistics can be a real 'downer'. But, I urge you (and anyone else reading this) to remember that when you read that XX% of patients die --- another xx% are alive. The challenge is to aim to be one of the xx% by taking care of ourselves and listening to our transplant experts🤍
How was the wedding experience for you with your lung transplant?
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The wedding experience for me was quite emotional, the mother of my son died when he was three and I wished she could see him get married. It is obvious they are madly in love and that to me is all they need, the rest will fall into place as they work through life together. I am doing well regarding the lung transplant with lung function at 99%, I do find it hard to exert myself, but I refuse to stop doing what I love. I am at the point where I no longer fear dying, I do my best to stop thinking about it and just get on with life as if it never happened. The only change is that now I don't hesitate if I want to do something. My initial worries were exacerbated by a lung transplant trainee doctor when I mentioned my concerns regarding percentages etc... and the response was well it is a palliative procedure. Why waste a single minute thinking about that which can happen to anyone? I do my best to just put it out of my mind. Thank you for your response I appreciate it.